000 05104nam a22005173i 4500
001 EBC30733648
003 MiAaPQ
005 20240122002158.0
006 m o d |
007 cr cnu||||||||
008 231124s2023 xx o ||||0 eng d
020 _a9783031272233
_q(electronic bk.)
020 _z9783031272226
035 _a(MiAaPQ)EBC30733648
035 _a(Au-PeEL)EBL30733648
035 _a(OCoLC)1396698421
040 _aMiAaPQ
_beng
_erda
_epn
_cMiAaPQ
_dMiAaPQ
050 4 _aRC952-954.6
082 0 _a616.83
100 1 _aAshworth, Rosalie.
245 1 0 _aChallenging Assumptions Around Dementia :
_bUser-Led Research and Untold Stories.
250 _a1st ed.
264 1 _aCham :
_bSpringer International Publishing AG,
_c2023.
264 4 _c�2023.
300 _a1 online resource (154 pages)
336 _atext
_btxt
_2rdacontent
337 _acomputer
_bc
_2rdamedia
338 _aonline resource
_bcr
_2rdacarrier
505 0 _aIntro -- About the Book -- Contents -- List of Figures -- Chapter 1: Introduction -- Meet the Co-authors -- Let's Write a Book -- Writing Sessions -- Missing Voices -- Emotional Content -- Dementia Statistics Overview -- Chris's Story -- Useful Resources: -- LGBTQ+ Community -- Useful Resources: -- Alzheimer's Society -- Alyson, Sheila, and David's Story -- Useful Resource: -- References -- Chapter 2: 'You Don't Look Like You Have Dementia' -- What Does Dementia at the Different Stages Look Like? -- Fighting for Financial Aid -- Raising Awareness Through a 'dementia card' -- Does It Help if People Know? -- Educating People About Dementia -- MAQ's Story -- MAQ -- Useful Resources: -- Winnie and Wullie's Story -- Winnie -- Useful Resources: -- Willy's Story -- Willy -- Useful Resources: -- References -- Chapter 3: 'How Does Your Dementia Affect You?' -- Understanding the Brain -- Myths About the Brain -- Areas of the Brain -- Myths About Dementia -- Myth 1: 'Dementia Only Affects Older Adults' -- Myth 2: 'There Is Nothing You Can Do to Change Your Risk of Dementia' -- Myth 3: 'Alzheimer's Disease and Dementia Are the Same Thing' -- Alzheimer's Disease -- Lived Experience -- Vascular Dementia -- Lived Experience -- Posterior Cortical Atrophy -- Lived Experience -- Frontotemporal Dementia -- Lived Experience -- Semantic Dementia -- Lived Experience -- Lewy Body Dementia -- Lived Experience -- Diagnosis Experience -- Martin's Story -- Myra and Archie's Story -- Agnes' Story -- Useful Resources: -- References -- Chapter 4: 'I Didn't Know I Was a Carer' -- Working with Paid Carers -- Being Recognised as Experts by Experience -- Sharing Home Space -- Examples of Best Practice in Care -- Planning Ahead -- Jenny and Her Mum's Story -- Useful Resources: -- Fred's Story -- Useful Resources: -- David and Anne's Story -- References.
505 8 _aChapter 5: What Research Means to Us: NRS Neuroprogressive and Dementia Network -- Getting to Know the Neuroprogressive and Dementia Network -- What Got You into Researching Dementia and Neuroprogressive Conditions? -- Could You Share Your Experiences of Dementia Research Over the Past 10-15 Years? -- Why Is Research Important? -- What Do You Wish People Knew about Research? -- Approaches to Clinical Trials in Dementia -- Lessons from COVID-19 Clinical Trials -- Hear from Research Participants from the Neuroprogressive and Dementia Network -- Spectrum of Research -- Understandings of Research -- Building a Partnership -- Examples of Best Practice in Co-produced Research -- Meet The Smarties -- Dementia Alumni -- Dementia Enquirers -- What We Would Like to See from Research Going Forward -- Stuart &amp -- Eileen's Story -- Sue's Story -- Rosie's Story -- References -- Chapter 6: Final Thoughts -- Question 1 -- Question 2 -- Question 3 -- For People Living with Dementia -- Family Members -- Professionals -- Members of the Public -- Get in Touch -- Embedded Links -- Index.
588 _aDescription based on publisher supplied metadata and other sources.
590 _aElectronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2023. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.
655 4 _aElectronic books.
700 1 _aFyvel, Sue.
700 1 _aHill, Alyson.
700 1 _aMaddocks, Chris.
700 1 _aQureshi, Masood.
700 1 _aRoss, David.
700 1 _aHay, Stuart.
700 1 _aRobertson, Martin.
700 1 _aGilder, Willy.
700 1 _aHenry, Winnie.
776 0 8 _iPrint version:
_aAshworth, Rosalie
_tChallenging Assumptions Around Dementia
_dCham : Springer International Publishing AG,c2023
_z9783031272226
797 2 _aProQuest (Firm)
856 4 0 _uhttps://ebookcentral.proquest.com/lib/bacm-ebooks/detail.action?docID=30733648
_zClick to View
999 _c317041
_d317041