Governing biobanks (Record no. 117362)

MARC details
000 -LEADER
fixed length control field 03726nam a2200421 a 4500
001 - CONTROL NUMBER
control field EBC1772812
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20240123070428.0
006 - FIXED-LENGTH DATA ELEMENTS--ADDITIONAL MATERIAL CHARACTERISTICS
fixed length control field m o d |
007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION
fixed length control field cr cn|||||||||
008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION
fixed length control field 120627s2012 enk sb 001 0 eng d
010 ## - LIBRARY OF CONGRESS CONTROL NUMBER
Canceled/invalid LC control number 2012392744
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
Canceled/invalid ISBN 9781841139050 (pbk.)
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
Canceled/invalid ISBN 184113905X (pbk.)
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
International Standard Book Number 9781847318831 (electronic bk.)
035 ## - SYSTEM CONTROL NUMBER
System control number (MiAaPQ)EBC1772812
035 ## - SYSTEM CONTROL NUMBER
System control number (Au-PeEL)EBL1772812
035 ## - SYSTEM CONTROL NUMBER
System control number (CaPaEBR)ebr10579753
035 ## - SYSTEM CONTROL NUMBER
System control number (CaONFJC)MIL377398
035 ## - SYSTEM CONTROL NUMBER
System control number (OCoLC)893332327
040 ## - CATALOGING SOURCE
Original cataloging agency MiAaPQ
Transcribing agency MiAaPQ
Modifying agency MiAaPQ
043 ## - GEOGRAPHIC AREA CODE
Geographic area code e-uk-ui
-- e-uk-en
050 #4 - LIBRARY OF CONGRESS CALL NUMBER
Classification number K3611.H86
Item number G68 2012
245 00 - TITLE STATEMENT
Title Governing biobanks
Medium [electronic resource] :
Remainder of title understanding the interplay between law and practice /
Statement of responsibility, etc. Jane Kaye ... [et al.].
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Place of publication, distribution, etc. Oxford [England] ;
-- Portland, Or. :
Name of publisher, distributor, etc. Hart Pub.,
Date of publication, distribution, etc. 2012.
300 ## - PHYSICAL DESCRIPTION
Extent x, 370 p.
504 ## - BIBLIOGRAPHY, ETC. NOTE
Bibliography, etc. note Includes bibliographical references and index.
505 00 - FORMATTED CONTENTS NOTE
Title From an idea to a project /
Statement of responsibility Jane Kaye ... [et al.] --
Title Embedding biobanks in a changing context /
Statement of responsibility Jane Kaye --
Title Mapping the regulatory space /
Statement of responsibility Susan M.C. Gibbons --
Title Dynamic networks of practice /
Statement of responsibility Catherine Heeney --
Title Governance in practice : patterns of awareness and engagement /
Statement of responsibility Susan M.C. Gibbons and Andrew Smart --
Title General attitudes to governance /
Statement of responsibility Susan M.C. Gibbons and Andrew Smart --
Title Attitudes to particular laws and governing bodies /
Statement of responsibility Susan M.C. Gibbons and Andrew Smart --
Title Preferences for governance /
Statement of responsibility Susan M.C. Gibbons and Andrew Smart --
Title Enacting governance : the case of access /
Statement of responsibility Catherine Heeney and Andrew Smart --
Title Reflections on practice and governance /
Statement of responsibility Jane Kaye --
Title Ethics and the governance of biobanks /
Statement of responsibility Catherine Heeney and Michael Parker.
520 ## - SUMMARY, ETC.
Summary, etc. Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.--Back cover.
533 ## - REPRODUCTION NOTE
Type of reproduction Electronic reproduction. Ann Arbor, MI : ProQuest, 2015. Available via World Wide Web. Access may be limited to ProQuest affiliated libraries.
650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Biobanks
General subdivision Law and legislation.
650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Biobanks
General subdivision Management.
650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Biobanks
General subdivision Law and legislation
Geographic subdivision Great Britain.
655 #4 - INDEX TERM--GENRE/FORM
Genre/form data or focus term Electronic books.
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Kaye, Jane,
Dates associated with a name 1962-
710 2# - ADDED ENTRY--CORPORATE NAME
Corporate name or jurisdiction name as entry element ProQuest (Firm)
856 40 - ELECTRONIC LOCATION AND ACCESS
Uniform Resource Identifier <a href="https://ebookcentral.proquest.com/lib/bacm-ebooks/detail.action?docID=1772812">https://ebookcentral.proquest.com/lib/bacm-ebooks/detail.action?docID=1772812</a>
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